Tuesday, December 08, 2009

Jon Was Born on a Tuesday

Or was it me? I can't remember days of the week worth beans. That's not why I was expecting you today. I actually have good news today. A doctor called me back.

Well, actually it was a PA, but that's damn near as good. He called back to discuss the conversation we had back on Jon's birthday, the 3rd of November. I had told him that Jon was being over sedated and had been since the accident. He checked the records and said, "All these drugs would just sedate the man!" Jon just lay there, staring at the ceiling, staring at the room, juiced out of his mind.

We talked about Brainfingers, the mind computer interface being tried out on some "PVS" patients. We discussed drugs like Ambien and he wondered how Jon had done with those.

"Jon has never been given any therapy other than range of motion. No drugs to increase alertness. No attempt to find out if he is capable of thought."

So they want to try him on Amantadine, an anti-viral drug that will help him avoid Swine flu as well. This drug has been shown to help aggression in alert TBI patients, and increase alertness in patients who are minimally conscious or PVS. The other drug they might try is Ambien.

This is the closest we gotten in 9 years to getting off the Phenobarbitol. He was put on that crap in Arizona and he's been on it since, just because they fear seizures and all the paperwork they can cause. But Dr. Shroud is gone and maybe the new doctors have noticed that Jon is drugged up and left alone whereas his Dad seems a nice enough guy who says his son CAN think and needs help proving it. So maybe we'll get some help now.

Hang in there Jon.

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